实用肿瘤学杂志 ›› 2022, Vol. 36 ›› Issue (1): 94-98.doi: 10.11904/j.issn.1002-3070.2022.01.018
• 综述 • 上一篇
黄妹妹, 罗瑞君, 翁一鸣 综述, 阮鹏 审校
收稿日期:2021-04-29
修回日期:2021-09-02
出版日期:2022-02-28
发布日期:2022-01-21
通讯作者:
阮鹏,E-mail:ruanpeng@whu.edu.cn
作者简介:黄妹妹,女,(1993-),本科,从事临床肿瘤学的研究。
HUANG Meimei, LUO Ruijun, WENG Yiming, RUAN Peng
Received:2021-04-29
Revised:2021-09-02
Online:2022-02-28
Published:2022-01-21
摘要: 家族性癌症患者的一级亲属由于遗传的易感性,往往会出现焦虑、紧张、害怕等情绪,影响其正常的社交及工作。为了及早识别出亲属的需求,本文对家族性癌症患者一级亲属的需求现状、影响因素、评估工具等方面进行综述,以期为亲属提供系统、有效的支持性干预。
中图分类号:
黄妹妹, 罗瑞君, 翁一鸣, 阮鹏. 家族性癌症史患者一级亲属的需求研究进展[J]. 实用肿瘤学杂志, 2022, 36(1): 94-98.
HUANG Meimei, LUO Ruijun, WENG Yiming, RUAN Peng. Research progress on the needs of first-degree relatives of patients with family cancer history[J]. Journal of Practical Oncology, 2022, 36(1): 94-98.
| 1 GBD 2015 Mortality and Causes of Death Collaborators.Global,regional,and national life expectancy,all-cause mortality,and cause-specific mortality for 249 causes of death,1980-2015:a systematic analysis for the Global Burden of Disease Study 2015[J].Lancet,2016,388(10053):1459-1544. 2 Eijzenga W,de Geus E,Aalfs CM,et al.How to support cancer genetics counselees in informing at-risk relatives? Lessons from a randomized controlled trial[J].Patient Educ Couns,2018,101(9):1611-1619. 3 San Miguel-Majors SL,Whitaker DE,Davis BC,et al.Education on cancer risk assessment and genetic counseling to address cancer health disparities among racial/ethnic groups and rural populations:Implementing culturally tailored outreach through community health educators[J].J Genet Couns,2020,29(2):243-246. 4 Wood ME,Rehman HT,Bedrosian I.Importance of family history and indications for genetic testing[J].Breast J,2020,26(1):100-104. 5 Kastrinos F,Samadder NJ,Burt RW.Use of family history and genetic testing to determine risk of colorectal cancer[J].Gastroenterology,2020,158(2):389-403. 6 Lee SD,Kim BC,Han KS,et al.Influence of family history on survival in patients with colon and rectal cancer[J].J Dig Dis,2014,15(3):108-115. 7 刘娜,王临池,胡一河,等.一级亲属癌症史对胃肠道癌症的遗传倾向影响[J].上海预防医学,2018,30(12):1020-1024. 8 Mcdonald F,Patterson P,White KJ,et al.Correlates of unmet needs and psychological distress in adolescent and young adults who have a parent diagnosed with cancer[J].Psycho Oncology,2015,25(4):447-454. 9 Ellis SJ,Wakefield CE,Antill G,et al.Supporting children facing a parent's cancer diagnosis:a systematic review of children's psychosocial needs and existing interventions[J].Eur J Cancer Care(Engl),2017,26(1):10. 10 Mcdonald F,Patterson P,White KJ,et al.Predictors of unmet needs and psychological distress in adolescent and young adult siblings of people diagnosed with cancer[J].Psycho Oncology,2015,24(3):333-340. 11 Alderfer MA,Long KA,Lown EA,et al.Psychosocial adjustment of siblings of children with cancer:a systematic review[J].Psychooncology,2010,19(8):789-805. 12 王雯雯,刘文斌,曹广文.胃癌发病性别差异的相关危险因素[J].上海预防医学,2017,29(4):257-260. 13 Ren ZJ,Cao DH,Zhang Q,et al.First-degree family history of breast cancer is associated with prostate cancer risk:a systematic review and meta-analysis[J].BMC Cancer,2019,19(1):871. 14 Bourdeaut F,Miquel C,Richer W,et al.Rubinstein-Taybi syndrome predisposing to non-WNT,non-SHH,group 3 medulloblastoma[J].Pediatr Blood Cancer,2014,61(2):383-386. 15 Hoskins LM,Werner-Lin A,Greene MH.In their own words:treating very young BRCA1/2 mutation-positive women with care and caution[J].PLoS One,2014,9(2):e87696. 16 Mcdonald F,Patterson P,Tindle R.What young people need when a family member dies of cancer[J].Support Care Cancer,2020,28(4):1631-1638. 17 Brunstrom K,Murray A,Mcallister M.Experiences of women who underwent predictive BRCA 1/2 mutation testing before the age of 30[J].J Genet Couns,2016,25(1):1-11. 18 Patterson P,Pearce A,Slawitschka E.The initial development of an instrument to assess the psychosocial needs and unmet needs of young people who have a parent with cancer:piloting the offspring cancer needs instrument(OCNI)[J].Support Care Cancer,2011,19(8):1165-1174. 19 Patterson P,Mcdonald F,Butow P,et al.Psychometric evaluation of the sibling cancer needs instrument(SCNI):an instrument to assess the psychosocial unmet needs of young people who are siblings of cancer patients[J].Support Care Cancer,2014,22(3):653-665. 20 Patterson P,Mcdonald F,Costa D,et al.Initial validation of a needs instrument for young people bereaved by familial cancer[J].Support Care Cancer,2020,28(8):3637-3648. 21 Lakhani NS,Weir J,Allford A,et al.Could triaging family history of cancer during palliative care enable earlier genetic counseling intervention[J].J Palliat Med,2013,16(11):1350-1355. 22 李佩琼,章远志,申本昌,等.遗传咨询为生物技术专业打开就业新局面——遗传咨询的初步教学实践[J].现代职业教育,2020,(40):78-80. 23 Ginoza M,Isasi R.Regulating preimplantation genetic testing across the World:a comparison of international policy and ethical perspectives[J].Cold Spring Harb Perspect Med,2019,10(5):36681. 24 Bowen DJ,Hay JL,Harris-Wai JN,et al.All in the family communication of cancer survivors with their families[J].Fam Cancer,2017,16(4):597-603. 25 Rodríguez VM,Corona R,Bodurtha JN,et al.Family ties:the role of family context in family health history communication about cancer[J].J Health Commun,2016,21(3):346-355. 26 陶红竹,张欢,夏蜀凤,等.家族性乳腺癌患者一级亲属早期筛查干预效果评估[J].中华普外科手术学杂志(电子版),2017,11(6):488-490. 27 Drake I,Dias JA,Teleka S,et al.Lifestyle and cancer incidence and mortality risk depending on family history of cancer in two prospective cohorts[J].Int J Cancer,2020,146(5):1198-1207. 28 Allen K.The importance of food,nutrition and physical activity in cancer prevention:an interview with Dr Kate Allen[J].Future Oncol,2018,14(15):1427-1429. 29 Hidaka A,Sawada N,Svensson T,et al.Family history of cancer and subsequent risk of cancer:a large-scale population-based prospective study in Japan[J].Int J Cancer,2020,147(2):331-337. |
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